in conjunction with the Down Syndrome Program at Massachusetts General Hospital
have now released a program where you can fill out a rather extensive survey on your loved one's current health and screenings and you will receive a personalized set of guidelines to share with their local primary care practitioner to make sure that all issues relted to Down Syndrome are being identified.
This is a tool for families/caregivers to use along with the individual's doctor to provide care in areas where the doctor may not have experience or knowledge but should be explored.
will give you more information on the program.
The full release
on this program is available (geared toward support groups).