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News from the ADSC - August 2020 edition

ADSC | Published on 7/31/2020
Adult Down Syndrome Center
Dear Michael,

We hope you and your family continue to stay safe and healthy. We know that many individuals with Down syndrome and their families are deciding whether to return to in-person school or work this fall. Dr. Chicoine shared some questions to consider when making this decision inthis resourcein our Resource Library. In this month's newsletter, you will find information about an upcoming webinar in the ADSC Health Education Series as well as health tips and other resources. Pleasecontact usif there are topics you would like to see featured in future newsletters.

Thank you!
Vitamin B12 deficiency is an issue that the providers at the Adult Down Syndrome Center often check for because it is found fairly frequently among individuals with Down syndrome. Having celiac disease may contribute to lower levels of vitamin B12. Additional information about symptoms of and treatment for vitamin B12 deficiency can be found inthis resourcein our Resource Library.

Keep your hands - and your germs - to yourself! Evidence continues to show that practicing good hand hygiene, maintaining physical distance, and wearing face masks can helpprevent the spread of COVID-19. We continue to encourage individuals with Down syndrome and their families to follow these guidelines and others shared by the CDC. To find additional resources related to this health tip, please see the
COVID-19 sectionof our Resource Library.

Webinar on Sleep in Adolescents and Adults with Down Syndrome
Getting good sleep is an important part of being and staying healthy. Join us for a webinar on this topic on Tuesday, August 4 at 12:30pm (Central Time). The presenters will discuss the importance of sleep as well as practical steps you can take to promote good sleep. They will also discuss conditions and issues that can lead to sleep disturbances. Both medicinal and non-medicinal ways to address sleep disturbances will be described. This webinar will be presented by Brian Chicoine, MD, and Katie Frank, PhD, OTR/L, from the Adult Down Syndrome Center. The webinar is free but registration is required. Please register atthis link.

The webinar will be recorded. The recording will be shared in ourResource Libraryand on ourFacebook pagewithin two weeks of the webinar. If you register for the webinar, a link to the recording will also be e-mailed to you.
The Trisomy 21 Research Society (T21RS) is still collecting survey responses for their research study on COVID-19 in individuals with Down syndrome. Caregivers and clinicians of individuals with Down syndrome who tested positive or had signs/symptoms of COVID-19 are invited to take the survey. More information and links to the survey can be found onthis pageof the T21RS website. Scroll to the middle of the page to find the links to the survey.

Preliminary results and takeaways from the study have been shared
here. Most of the responses came from individuals in other countries. The United States represented 17 percent of the responses.